News & Events
Stay informed with the latest breakthroughs, stories, and community events shaping the future of rare diseases in India.
Featured Story
Groundbreaking Study on Gene Therapy for SMA Type 1 Shows Promising Results
A new study published in the New England Journal of Medicine offers hope for families affected by Spinal Muscular Atrophy Type 1, one of the most severe forms of the disease...
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Patient Advocacy Group Launches New Support Network
A new initiative aims to connect families across India...
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Annual Rare Disease Day Conference Announced
Join us in Delhi for a day of learning, networking, and hope...
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New Diagnostic Tool for Lysosomal Storage Disorders
Researchers at AIIMS have developed a faster, more accurate test...
Read More →SFRD Launches Nationwide Awareness Campaign
Our new campaign, #RareIsReal, aims to bring visibility to the challenges faced by the rare disease community...
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Webinar: Understanding Your Child's Diagnosis
Join Dr. Priya Sharma for a free webinar on navigating the diagnostic journey...
Read More →SFRD Funds New Research Grant for Gaucher Disease
We are proud to announce our support for a new research project at the University of Mumbai...
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